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A Bridge Beyond

If you want to learn more about me and my own healing journey, read on.  I tried for years to create an account of what I went through to come to the path I have taken in life since everything changed for me when I awoke into a new world from coma in 1990. What follows are selections of my attempts to describe what life became for me in the years I spent building a bridge beyond the end of everything.

Selections

Trauma

This is a description of the experience of trauma as I lived it in the wake of the brain injury that changed everything in my life.

Coma

This is a depiction of the space I experienced in coma and the process of becoming aware at the edge of it.

I am not my 'Self'

This describes the shock of the moment my self-awareness returned three weeks after the brain injury.

Trauma

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Imagine walking through a door you thought led to another room but found yourself instead in another world. Strangely, it is a world that looks, sounds and acts like the world you thought you lived in before you walked through the door…

 

Everything appears to work as usual, but you don’t. Everyone says you look great, but you are not. It is as if the polarity of the earth has reversed, but only for you. 

 

Brain injury is such a door. It is not the only door. There are many. 

 

When you awake on the other side of the door, everything has changed. With brain injury you may not even know it has changed. You are numb. You are not aware in any ordinary sense. You just are…

 

You are like a castaway alone on a desert island. You think you should try to get home. But how? The distance is oceanic. The aloneness is absolute. Nobody is going to rescue you. Nobody can.

 

But, you are not on a desert island. You are at home. Yet you are oceans away from where you were – or where you thought you were. It is as if a veil has been drawn between you and the world around you. You can see everything. You can hear everyone. But, you cannot reach through the veil.

 

Whatever has happened – an accident, an assault, a life-changing diagnosis, a loss – it has knocked you into an elliptical orbit. You can see everyone else in their regular orbits, but yours does not intersect.

 

You don’t know what has happened. I don’t mean you don’t get that some thing has happened that has landed you in another world. I mean you don’t know how or why you are stuck where you are; or why you cannot connect. You may not even know that you cannot connect. 

 

And, you don’t know how to know what has happened. We do not have adequate language to help us describe the experience. We have a growing conceptual field for describing ‘trauma’ as an externalized phenomenon; for medicalizing it, for rehabilitating it, but not for expressing the existential experience of it. 

 

This not knowing how to know what has happened and what is continuing to happen is the invisible distance of trauma. It is a conundrum. You cannot think your way through it. The distance will not magically disappear. You will not wake up one morning and realize it was all a dream. You have lost the roadmap of the way home. 

 

The experience of living with brain trauma often felt to me like being lost in a dimensionless world, as if I was on a foggy sea with no compass or sun or stars to orient me or show me a way. Each day was like the day before. The wind still blew, the seas still rolled, but I had no clue whether I was getting anywhere or if I was sailing in circles. 

 

The vastness of the sea is like the unknown dimensionless world of trauma. It surrounds you as an horizon-less horizon. It swallows you. Once you embark upon the sea, you can never know when or if you will come back, or if the sea will deliver you to yet unknown challenges or perils, nor whether these will lead to insights, further peril or grace. Yet I often felt I was being carried, as if by the winds and the sea; and even watched over, as navigators through the ages have remarked the dolphins do and as I, too, have seen them do even in the middle of a tropical storm. 

 

In hindsight, I marvel at the number of outstretched hands, the willingness of others to support me and the gifts of grace which delivered me to lessons I did not seek. And, like a navigator in unknown waters, I was from time to time led to discoveries and awakenings I could not possibly have known were it not for the brain injury itself. Some altered my understanding of what it means to be a human being – what shapes us, what constrains us, and what is possible for us. 

 

Among the early stories in the book I describe the experience in ‘timelessness’ in the state of consciousness prior to ‘awaking.’ Dwelling in that prior state, and returning to it over the course of ‘awaking’ from it, it became clear that whatever it is I might think ‘I am’ (my self-identity), it is created and re-created, or ‘called’ and ‘re-called’ into existence anew each moment; and is sustained in ‘time’ only by memory, just as ‘my consciousness’ was ‘resuscitated’ (re-created) and ‘stabilized’ in ‘identity consciousness’ by a doctor by means of arousing memory. 

 

The sense of ‘identity continuity’ that assures me I am the same person today I was yesterday is an appearance built entirely in memory. ‘I’ – the ‘I’ that experienced the state of consciousness prior to awaking, exists, apparently, beyond memory.

 

In the story, “Tempest of the ‘self’” I describe discovering in a moment of abject terror that ‘I’ am not my ‘self-conscious-self.’ I had no clue I had been living those early weeks after the injury without what is commonly called the ‘ego’ or ‘self-consciousness’ – that package of thoughts and feelings which we identify as uniquely our own stories, worries, concerns, conceits, obsessions, sense of ‘self,’ etc.. It was not until the ‘self-conscious-self’ suddenly re-appeared that I became aware I had been living without it, and that ‘I’ am, apparently, not that. This is not to say I achieved any lasting freedom from the ‘self-conscious-self.’ On the contrary, I became acutely aware of its grip, and also of the tyranny of ‘memory.’ 

 

Perhaps the most profound discovery for me came with the clear experience in-the-body that healing is an actual force of nature. It is not an idea or a wish or a hope. It is not reserved for some and withheld from others. It is a rule of life. Perhaps it is the rule of life. It is the primary phenomenon of life – life’s power to persist. Without it no form of life could exist. It is primal. It is always present. It is always acting. It is welling up within us always. Like the tides, healing is driven by its own invisible impulse, a force transcending space and time. The force of life, itself.

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COMA

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First — it was only sound ... 

 

 

 

There was no meaning in it.  

 

 

 

It was just some distant noise… a low drone.  

 

 

 

 

Then…  silence. 

 

 

 

 

 

 

 

 

 

 

 

 

Long… 

 

 

 

deep… 

 

 

 

indigo… 

 

 

 

oceanic… 

 

 

 

silence. 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Nothing…

 

 

 

Then… again…  

 

 

Some distant,

 

muffled sound… 

 

 

Like the remnant of a dream….

 

 

 

A murmur in the distance rises from the depths, 

 

Like a giant, lumbering… bubble… 

 

Breaking the surface,

 

outgassing its sound… again. 

 

 

 

“Who is the President of the United States?”

 

 

 

 

 

Then… nothing. 

 

 

 

Soft, 

 

 

 

open, 

 

 

 

 

infinitely expansive, 

 

 

 

 

            nothing. 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Eons pass…

 

 

 

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Then… something…  

 

 

 

Another bubble…

 

 

 

 

“Who is the President of the United States?”

 

 

 

 

The sound… again…  

 

 

 

 

 

… Cognition stirs in the darkness …

 

 

 

‘I’ am (apparently) not ‘the space.’ (Though there is no sense of not being the space. There is only vastness.)

 

 

 

‘I’ am (apparently) in space.  (Though there is no sense of being an ‘I’. Only a movement in consciousness that is apparently precipitating a ‘point’ of awareness. An infinitesimal point, without form, without substance.)

 

 

 

I am (apparently) floating in the infinite distance of deep space.  (as if ‘awareness’ is discovering it is ‘aware.’)

 

 

 

 

 

…I am (apparently) hearing sound…

 

 

It (what awareness is becoming aware about) is unimaginably far away.  

 

 

‘I am’ (as awareness becoming aware it is becoming aware) ‘listening’ (as ‘listening’) to some ––  thing.  

 

 

 

 

 

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‘I am’ (as awareness) (apparently) not alone.

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I am not my 'Self'

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I am lying in the hammock as I have been day and night since the brain injury three weeks ago. It is towards afternoon. The sun has finished its climb into the branches of the great oak tree that stands just outside the window.  Its light is no longer streaming directly in the window. I no longer have to cover my eyes. I am swinging gently from time to time, as I have been whenever I am not asleep in the hammock. Adam has been coming and going from the porch as he has every day. 

 

I am not thinking about much of anything. Everyone has told me I must rest. I am resting. I still cannot do anything else. I am aware of what is going on around me. I am aware that Adam still wants to climb up on his dad. I am aware that day passes into night passes into day. I have gotten used to the voice of the man who comes into our house in the early evening. He is not here yet today.

 

The sunlight is casting shadows from the great oak tree onto the porch windows. The light is gentle… then…

 

Suddenly… the light on the window begins to shimmer. 

 

 

A grey shadowy specter appears from nothing… 

 

It is terrifying, like the Ring-wraiths in Tolkein…

 

The specter grows instantly into a shining silver net… 

 

It speeds towards me…. indescribably fast… 

 

It grows rapidly as it flies at me …

 

I recognize it…. 

 

I am terrified… 

 

My arms fly up instinctively to cover my face… 

 

I feel my body shoot backwards into the hammock… 

 

I cry out in huffs and puffs through gasping breaths ….

 

I try desperately to get away…

 

The net engulfs me …  

 

my arms…  

 

my legs… 

 

my head… 

 

my face…

 

It sticks to every surface of my body… 

 

It shrinks tight… it feels like a snake-skin…

 

Terror grips me…    

 

The mind races.

 

It is a snake skin… snakes shed their skins … it must come off!!

 

I claw at my skin….  

 

I try to peel it off …

 

I claw at my arms …

 

I scrape at my face ….

 

I am in panic …

 

My heart is racing ….

 

I know it is useless …

 

I know what it is …

 

I am helpless …

 

Every part of me tightens …

 

I feel myself squeezed as the skin shrinks tight …

 

I know what the specter is. 

 

I knew it the instant I saw it coming. 

 

It terrifies me because I know what it is. 

 

It is not foreign. 

 

It is not strange. 

 

I recognize it instantly… intuitively… unmistakably…

 

It is me. 

 

It is my ‘self-consciousness.’

 

It is my self-conscious ‘self.’

 

I am shaking from the terrifying sight of it flying at me… 

 

…from its clinging to my body …

 

…from my impotence to stop it

 

…to save myself from it…

 

 

Then… from out of the terror… an awareness dawns…

 

‘I’ am not this specter… 

 

It is not me…  

 

I lived these three weeks without it…. 

 

…without my self-conscious self…

 

‘I’ … am not my … ‘self-conscious-self.’

 

It … is not … me.

 

It … is not what … I am.

 

‘I am’ clearly something other than my self-conscious 'self'…

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Anchor 1

Some more Selections

Desperation

A description of the experience after the re-awakening of my self-conscious 'self' into the new awareness of my inabilities.

Hope

I finally remember something... someone. I am still lost in Lala land. Maybe there is a way beyond...

Ambi-Valence

The brain is stuck in ambivalence even months after the fall. It is a frustrating and sometimes comical period swimming in a soup of despair and mania.

Desperation

 

With the return of the self-conscious-self came an instant flood of concerns. I do not now know a single thing more about my situation than I knew the moment before. But now I am concerned, even panic-stricken about it. 

 

A new voice appeared with the specter. It is a voice that was absent these past three weeks.  I didn’t even know I was living without it. I had no self-awareness that I had not had my self-conscious-self talking to me. It just wasn’t there. Everything else was there, but not fear, anxiety, worry, concern, doubt…

 

A new tyranny overtakes me. I became obsessed with worry about my condition, about my situation.  When would it end: this inability to remember anything… this not knowing why I have walked into a room… this debilitating fatigue…

 

Suddenly, I am waiting for my brain… waiting for it to recover… waiting for it to return… waiting to be able to do something… anything.

 

It is not happening. Nothing is happening. I am not getting any better. Each day is exactly like the day before. No energy. No stamina. No ability to be on my feet for more than a few minutes. Each effort to do anything is followed by hours of collapse. Now it feels like a punishment.  I became desperate. 

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I have to do something. I do not have a brain to work with. But I still have hands. They still work. I will put them to work. I will rehabilitate myself by working with my hands. Maybe my brain will never come back to life, I mean, in a way that will let me use it for work, to make a living. Yes, working with my hands is a good idea. It might be all I have left.

 

I found an old Wooden Boat magazine.  I looked in the classified section in the back. I saw an ad for plans for a small row boat, a dinghy, made from plywood. The plans cost $25. I wrote a check. I put it in the mail.

 

The next day I went out to the mailbox. No plans. What? How can that be? I sent the money. I got the address right. Why were there no plans in my mailbox? I became very agitated. To hell with the plans! I don’t need plans! I used to design boats. I’ll design this one!

 

I call my sister. She lives down the street. I insist she come get me and take me to the lumber yard. She says no. I insist again, and again, until she gives up. She drove me in my truck to the lumber yard. I got two sheets of plywood. I don’t know how I did it. I am sure I did not load the truck. She drove it back to my house and backed it up the drive.

 

I don’t know how long the plywood sat on the back of my truck. It must have taken me a week to recover. Then I started to work. It is a ridiculous enterprise. I cannot work more than ten-minutes. I am wiped out for the rest of the day. But I keep doing it. Ten-minutes, each day, or each day that I can do it. There are many days that I can do nothing. I cannot get out of the hammock.

 

I often overdo it — if I work fifteen-minutes, instead of ten, I am done for two days. My bowels collapse. I am as weak as a kitten for hours, sometimes days. I am driven, I am manic. I am slow-motion-manic, if that makes any sense. I am desperate to recover and this project is my only way.

 

Finally, after weeks and weeks, I came to the point where I need to sand the joints of the hull. I sand every day. Five-minutes every day. That is all I can manage. Sanding is hard work. Pushing and pulling the sandpaper back and forth by hand. Pressing as hard as I can manage so the sandpaper grabs some wood. It is endless. It is exhausting. I keep at it.

 

Eventually, I finish the sanding. It must have taken three-weeks. The day I finish, I stand looking at the upside down hull, its rounded joints all made soft by my hard work.  Then, I notice something looking back at me from under my workbench. It is an electric sander. I look under the bench. I have not just one electric sander. I have five. All five sanders sat there all three weeks peeking out at me from under the bench. I laugh and I curse. I go in the house and collapse in the hammock. I am spent.

 

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Hope

 

It is three months since the brain injury. Memory is still only a memory. I am working with numbers, trying to see if I can remember two numbers at a time so I can make a phone call without having to use my fingers and the paper for every single number. It is a discipline. It wears me out.

 

It is short-term memory that is still missing. I call it functional memory. It is the memory which, when you don’t have it, makes it difficult or impossible to do things. You start out to do something, but you forget what it is. You stand in a room wondering why you have come there, or if you haven’t left the room you were in, you are wondering why you are standing up.

 

I finally learn to trust my feet. When I get up from the hammock and find myself walking into the kitchen with no idea why I am there, I stop stopping to try to figure it out. I learn to just kept moving. I learn to let my feet keep going. It seems to work. 

 

Eventually, I stop moving because the feet have taken me to a counter, or to the refrigerator. I stand and look at what is in front of me. I look at what is on the counter or what is in the refrigerator. It takes a while, but generally I will see something that makes me feel it is why I had come into the kitchen. Whether it actually is or not, I never know. But it makes me feel as if I have remembered.

 

Longer-term memory is not good either but it does not pose the same practical problems. One day I remember Nianzu. I don’t know why I remember him. But, I am glad that I do.  I had invited him to come to my class a couple of years before. 

 

I saw his name on a sign on a building in the middle of our small town. I walked up the stairs to his office. I went in. I waited for him to appear. I asked him to come to my class to talk about Chinese medicine. He says, in very few words, that his English is not good.

 

I am very understanding. I tell him he doesn’t have to talk at all if he doesn’t want to. And, anyway, doesn’t he do some kind of movement thing? I wave my arms up and down. He looks at me as if he doesn’t understand. He is trying to politely excuse himself from my invitation. I wave my arms again. He touches his hands together in front of himself and says, “Taiji?”

 

“Yes, that’s it!” I say, as if he has just agreed to something. 

 

“You don’t have to talk at all,” I insist. “You can just demonstrate that Taiji business.”

 

I am the ugly American. He is the polite Chinese. It isn’t a fair fight. He says he really doesn’t think he can. I insist that surely he can, no problem. I will pick him up at his office. I will take him to the University. I will bring him back to his office. All he will have to do is demonstrate that movement stuff. He won’t have to say a word. He finally nods his head in surrender. I think he mostly wants me to go away.

 

I pick him up at his office as arranged. We drive to the University. I ask him questions on the way. He talks about how what we now call Traditional Chinese Medicine was literally put together in one conference in 1954. 

 

Practitioners of traditional medicines were brought together from all corners of China. They were all put in a hall together. What came out was the codified version of traditional Chinese medicine that has been taught and practiced all over China ever since then; and is now taught around the world.

 

He talks about how random was the moment in time that captured an entire culture of medicine with a history older than China, a scope as broad as Asia, and a diversity as rich and varied as all the languages and cultures of the ancient Asian world. It was essentially ridiculous and miraculous. 

 

We park the car and walk to Woods Hall. He is impressed at the sight of the great open expanse of the grassy quadrangle in the center of campus. He comments that you would never see such a thing as this in China. 

 

“Never see what? I ask. “Such a big open space?”

 

“No,” he says. “Such an empty open space.”  

 

In China, he explains, a park like this would be full of people: people exercising, practicing Taiji and Qigong.

 

The class is a course called “Medicine, Health and Culture.” We are at the transition in the course between four-weeks spent in intensive study of the San people of Southern Africa. We have a treasure of film archives of one particular group of the San people. They became the object of study of a Harvard team of ethnographers in the early 1950’s at a time when they were still free-roaming hunter-gatherers in the open bush country of what became modern-day Botswana and South Africa.

 

The San practice a tradition of healing trance and dance which the class has seen film footage of so often by now that it has lost its strangeness. I ask if there are any questions about the San people before we move on to the next section of the course; a section on the major global healing traditions, including Ayurveda and Chinese medicine. 

 

One student asks what is this ‘stuff’ of healing that the San call “ki” and how do they get it and how do they transmit it in their hands-on healing dances. I tell the class that it is, apparently, some sort of ‘energy,’ or so it has been described in the literature, though I have no idea what that means. Then I introduce Dr. Li.

 

Nianzu stands up in front of the class. He doesn’t say a word. He motions the rest of us to stand up as well. Nobody moves. I stand up. The class stands up. Nianzu brings his hands towards each other in front of his belly. He starts to slowly open his hands away from each other, then slowly brings them closer together. I mimic him. The class starts to follow along.

 

Nianzu continues. We continue. Hands slowly moving away from each other. Hands slowly moving towards each other. Not touching. Just approaching, then moving apart. Palms facing each other, always.  Wrists relaxed, hands waving a little with the movement as if it was being done under water.

 

Then I begin to notice. First one student then another starts looking down at their own hands while they are still following along. Then I feel something. I look down too. What is this? Nianzu is not paying any attention to our discoveries. He just keeps the movement going, slowly. 

 

There it is, in our own hands. The answer to the question: “What is the “ki” stuff?”

 

The Chinese call it “Qi,” pronounced, “chee;” also spelled, “Chi.” Strangely, the Japanese call it “ki” exactly as the San people. Nianzu has brought us in contact with our own ‘energy.’ It is not an ‘idea.’ It is something actual. It can be felt. It can be experienced. It exists.

 

I remember this moment. It dawns on me that this might be a way. Could this strange but real other path of knowing give me an alternative foundation to build a new life upon? One that doesn’t rely on the return of my cognitive brain? 

 

I had become despairing that I may never get my brain back. It hadn’t even begun to come back in three months. This new idea gave me hope.

 

Nianzu has a new office in the next town. He is teaching classes in his waiting room. I go there. I start taking his classes. 

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 Ambi-valence

 

I must have seemed a very odd student to Nianzu. I signed up for every class he offered from the time I started to study with him. At one point, he said to me,

“You do not have to learn every form.  It is good to just learn one and practice it.”

 

“Yes, yes,” I said. Then I signed up for his next course. And the one after that.

 

There is an effect of brain injury which I didn’t understand when I was in the middle of it. I became a little manic. I became a little obsessive.  Perhaps it was this tendency which really helped me to become established in Qigong practice. 

 

Actually, it took me a long time to become established in my practice. The truth is, I went to class obsessively. I often did not practice at all between classes. I forgot to, or I was too exhausted. But, because I took every class, I went to classes often. This, I am convinced, is the reason I ultimately succeed in learning Qigong and incorporating it into my life. Actually, at the time, I pretty much built my life around it.

 

It wasn’t a smooth road, though. There is another aspect of brain injury that effected me almost every day. I became extremely ambivalent. Not only the ‘indifferent’ variety of ambivalence I mentioned already. Also, the bi-valent kind of ambi-valence. I was often both for and against things in equal measure, simultaneously — sometimes to a ridiculous degree.

 

I remember driving my truck to go to class. My hands are on the wheel. My feet are on the pedals. My head is out the window (literally) yelling, trying to turn me around. My mind is hurling scorn and ridicule at where I am going and what I am doing, even as I am driving to class. I hear my mind talking out loud, sometimes shouting out loud. It is saying:

 

“What do you think you are doing?”  

 

“Who do you think you are?”  

 

“Why are you going to this class?”  

 

“This guy in black pajamas: Who is he? Why are you following him?”

 

“You are being ridiculous!”  

 

“You are an idiot!” 

 

“You are being stupid!” 

 

“You are not Chinese!”

 

This voice went on and on, day after day, week after week. The body drove to class. The mind harassed and harangued the whole way there. My routine for the first year was to go after class to a pub down the street, drink a couple of beers and smoke a few cigarettes. 

 

The mind has its revenge. Yet, somehow, I kept going. 

 

The courses with Nianzu begin to blend into each other. In the early years, he conducts himself exactly as he did in my university class when I first saw him teach. The large waiting room of his clinic has a mirrored wall. We wait in the cleared waiting area for him to appear from the clinic rooms in the back.

 

Nianzu walks in. He is dressed in black silk Taiji tunic and trousers. He acknowledges us, then he turns his back to us and faces the mirror wall. Then he begins to move. We watch him from behind. We watch his front in the mirror. The mind moves back and forth between him and his image in the mirror. He moves. We follow. There is no talking.

 

Every once in a while a student asks a question. Nianzu folds his hands in front of his chest and gives a simple answer in halting English. He apologizes for his English. He turns around and goes back to moving. We go back to following him.

 

One student asks him how we should be breathing. When do we breathe in, when do we breathe out. Nianzu listens, then he says, “Just natural breathe…”  

“Don’t think about …” “Just breathe natural…”

 

The student isn’t satisfied. He says he read in a book that you have to breathe in just such a way and that it is very important to do it correctly.  The next week he brought the book to class. It is the book that made Tai Chi famous in the U.S., written by the man who brought the practice from Taiwan to the States 25 years before. He shows the book to Nianzu. He points to the diagram showing the ‘correct’ breathing. Nianzu stands in front of us looking at the illustration. He studies it for a long moment. Then he says, “Ah…. Editor make mistake…”

 

He closes the book and gives it back to the student. He turns around to face the mirror. He pauses. Then he starts to move. I follow him, letting my breathing be what it is, as it is, in a way that I think he means by “just breathe naturally.”

 

Nianzu taught many classes. He taught many forms. He taught the very popular forms, like Soaring Crane Qigong. He taught an esoteric Taoist form, Lang Ya Qigong, a previously secret form which he had been taught by his teacher, Dr. Yangzhong Shang. Traditionally, secret forms were passed from one teacher in one generation to one student of the next generation. This is how the forms survived the centuries as they were originally practiced. 

 

Dr. Shang instructed Nianzu to teach the Lang Ya form publicly for the first time in its history. I am among the lucky heirs to this teaching. I practice it virtually every day and have since I learned it nearly thirty years ago. 

 

One Spring, Nianzu offers a class he calls Taiji Circles. I sign up. He comes into the room as he always does. He faces the mirror wall and starts to move. We follow. Or, we try to follow. After a few weeks, something is apparently not going the way Nianzu thought it should. He says we have to keep practicing. We will work with this movement until we get it right, then, maybe, we will go to the next.

 

We come to class each week. We stand behind Nianzu. We make a gentle circle with one arm, the right arm, going in one direction, clockwise, scribing an arc through the air, returning to standing, then striking a second identical arc in the air, and a third, and a fourth…

 

We go on like this for a full hour, each week, week after week. Early on, someone asks him what is the name of the movement we are practicing. Nianzu doesn’t stop moving. He keeps making circles. Then he says, “Taipei.”

 

We went on like this for six full weeks. One movement. Taipei movement. One full hour each time. I wonder what will be the next movement. What will be its name? Will it be another famous city in China, “Beijing,“ or “Guanzhou?” Then we did it again the seventh week. 

 

On the eighth week Nianzu stood before us and announced that now he will teach us the second movement. Somebody asks what will be the name of the new movement. Nianzu turns to face the mirror wall. He pauses. He begins to move. This time his left arm scribes a gentle arc in the air, exactly like the arc the right arm had been scribing for 7-weeks, but now with the left arm and in the opposite direction, counterclockwise. Then he says, “Type B.”

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Anchor 2

A few more Selections

Doctors

I reach out to Doctors to find help with a mix of limited results and a few golden doors which open for me.

Helping Hands

People reach out to me through the fog of my own ambivalence. Despite my indifference, healing finds its way to me through the caring of others.

Healing Support Circles

I begin to share with others some of the practices I have been learning about that are supporting my own healing.

Doctors

 

I am seen periodically by neurologists. They are the brain injury doctors. I always have questions for them. They always have the same answer for me. When I say I suddenly have the sensation that I am flying through the air as if I have just been shot out of a human cannon; the answer is, “Hmm, yes, that experience is consistent with the kind of injury you have had.”

 

When I say I have the sudden sensation I am expanding in size like the Pillsbury doughboy or the Michelin tire man, the answer is, “Hmm, yes, that experience is consistent with the kind of injury you have had.”

 

I hear this from different doctors in response to every weird, odd, frightening experience I am having; as well as to the more pedestrian issues, like memory not coming back, the extreme exhaustion I experience, the frustration, the depression, the inability to sleep, the dreams…

 

Always the response is the same. Always there is nothing to be done about it. Always I am assured that everything I am experiencing is to be expected. It occurs to me after about a year of this, that I could put out a shingle as a specialist in brain injury and do the same thing my neurologists are doing.

 

At one point, one of the doctors suggests that I join a brain injury support group. I ask what they do in the support groups. He says it provides an opportunity for people with similar injuries to share their experiences with each other and to not feel so all alone. I think about it. I have nothing against the idea. But, a voice deep inside me says this is not what I am looking for. I want to know what I can do to get better. I need to know what I can do to promote my own healing. It is as simple as that.

 

I still have no stamina, even many months after the injury. I have very little functional memory. I still find myself standing in the middle of a room with no idea why I have gone there. I can read. I can read the same page over and over and not know I have just read it the moment before.

 

Every day is a slow repetition of the day before. Nothing changes. Every day I think I will be able to do a little more. Every day I learn otherwise. Doctors are no help. They can’t be. There isn’t anything that anyone can do. The best a doctor can do is counsel patience, assure me that I will eventually improve, and recommend a support group. I didn’t want a support group. Maybe I should have.

 

What I want is to get better. What I want is to be able to do the things I have always been able to do. What I want is to be able to work and make money. I want to be able to do ‘normal’ things with my son and my family. What I need is to heal so that I can do these things.

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A brain injury is a curious thing. It may or may not leave you physically crippled. It may or may not leave you cognitively impaired.  I thought I was lucky. The effects of my injury were basically invisible. I looked okay. If you didn’t know me, you would think I was fine. I wanted to be fine. But I wasn’t.

 

Mike came through town about a year later and stayed with us for a couple of days. I don’t remember where he was going. There was a birthday party for Donna at Jay and Andrea’s house. Stream was there. We drummed and drank. I drummed and drank. 

 

The next day Leah told me things I had done, things I had said. Mike was there. He remembered them too. I did not. At first I did not believe them. How could I not remember things I had said and done. Then I was embarrassed. Then I was stunned. Then I was afraid. I’d had a blackout.

 

I have a problem. I make an appointment with a psychiatrist. We begin to work together. I don’t stop drinking, but I do go to sessions. We talk. He listens. He begins to tell me about PTSD. I don’t know what he is talking about. He gently continues, week after week, listening — reminding me that what I am going through is normal for people with PTSD. I still don’t know what he is talking about.

 

Somehow I know it is important for me to keep going to sessions. Somehow George keeps agreeing to see me. I get a battery of cognitive tests. I have big blank areas in cognition. This makes as much sense to me as it would to you if I told you that you are only seeing 40% of what you are looking at. The other 60% is there in clear view in front of you. Everyone else sees it. You don’t see it. 

 

I talk about the guilt I feel about getting help for my injury. I talk about the fear I feel that I will be ‘found out.’ George reassures me that these are normal feelings. I don’t know what he is talking about. 

 

A year goes by. One day he is explaining to me how, for people to whom something bad has happened; if for one reason or another they don’t know why it happened, something in the brain says it is their fault that it happened. I don’t know how many times he has explained this to me. I vaguely remember all the words, as if I have heard them many times before.

 

Then, like a curtain has been drawn away, this time I get it. I feel guilty for my own injury. It is because I don’t know what happened. Nobody ever told me what happened. Nobody ever came to the hospital. I never asked about what happened because I felt guilty about it. I was afraid that if I asked anything, something bad would happen. It is normal. This is what happens to people when this kind of thing happens to them.

 

Nothing gets better. Nothing gets easier. I still feel I am stealing something. I am still afraid I’ll get found out. I still, apparently, believe it is my fault. But now I am able to hear George. Now I can see what he is talking about. Now it makes sense.

 

It takes another year for me to finally stop drinking. I don’t drink that much. But I don’t not drink, either. It doesn’t take my knowing it is not good for me. It doesn’t take my understanding that my brain works differently since the injury. It doesn’t help that the self-awareness of where I am with alcohol (the voice that always spoke to me when I reached my limit) went to sleep with the injury. It doesn’t help that my taste for alcohol woke up with the injury. It doesn’t matter that I know these brain changes are affecting me. 

 

It will take Vipassana.

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Helping Hands

 

Adam is now old enough for preschool. We go to look at Acorn Hill. It is a four-room schoolhouse from another era nestled among tall trees on the flank of a hill above Sligo Creek park. The playground is made of logs and wooden structures built of natural rough-sawn beams and boards. Everything is soft and craggy. The whole scene looks like it grew out of the ground. 

 

I tell Leah I don’t know where Adam will go to preschool, but I will be coming here. I got to know other parents and I got to know the staff. They got to know me. They came to know why I had so much time. 

 

Lydia spoke to me often about a doctor she thought could help me. I listened, sincerely, and then forgot about what she said. It wasn’t that I didn’t care. I did. But the ambivalence I lived in was profound. You could have told me there was a gold ingot with my name on it waiting for me to claim and I would have said, ”Thank you,” and then forgotten all about it.

 

One afternoon I went into the school office where Lydia worked and sat down. She asked me a question — the same question she must have asked me a dozen times over the past couple of months. She asked me if I had called the doctor she had recommended. 

 

“Who?” I asked. 

 

“Harold. The osteopath,” she said, “The doctor I told you about.”

 

“Oh…” “No, I don’t think so…” “I will, though…”

 

Then she did something I will never forget. It was so simple it surprised me. She reached over to the phone on her desk. She picked it up. She called the doctor’s office. She made an appointment for me right then, right there in front of me. She knew my schedule because she knew Adam’s schedule. She didn’t have to ask me anything.

 

I missed the appointment, of course. But then the doctor did something simple. He called me on the phone. He didn’t scold me for missing my appointment. He said he thought he could help me. He asked if I wanted to try and see if what he did could help. I said yes. I wrote down the new appointment. I told Leah about it. I went.

 

Over the course of the next few years I must have received more than 200 osteopathic treatments. It was during these years also that George arranged for me to receive massage treatments twice each week. I didn’t ask for them. He suggested them. He arranged for them. Nancy offered them as a part of her training hours for the first half year or so. But she kept offering them for well over a year beyond that. Maybe it was over two years. I came to realize that the only ‘moments of clarity’ I had in those days were on the massage table. I resolved to never make a decision about anything important unless I made it on the table.

 

It was also during this time that Andrea asked if I could practice the Feldenkrais work I had learned. I told her I did not know. I did not remember the lessons though my hands seemed to remember the essence. I could not go out of the house. She offered to come to our house if I wanted to practice. She did, every week for a long time. Then other people came. I worked like this for two years. Whenever someone came to the house, I worked with them.

 

I don’t know where I would be today had not these and many other people reached out time and again to pull me across the abyss of my own profound indifference.

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Healing Support Circles

 

I spent the early years after my injury searching, testing – trying to find any and every means I can to promote my own healing. I have been studying qigong with Nianzu. I have been practicing a simple form of meditation called anapana meditation. It is a step along the road to vipassana meditation. It is simple. It is practical. I have been learning about imagery and practicing guided meditation.

 

I work with each of what I began to call my own healing support practices. I explore anything that comes my way, anything I think might help me get better. My memory is still not coming back. I am still exhausted. But I am beginning to be more aware of what helps and what gets in the way. 

 

I began to develop my own simplified versions of each practice. I find a few methods, disciplines and practices that feel to me like they make a difference. I pursue them. I practice them. I grow in them.

 

I don’t remember who asked me about it or exactly why I thought I could or should do it, but after a few years of practicing these methods myself, I began to teach some of them to small groups in a local church. I call the gatherings, “Healing support circles.”

 

The groups are not specific to brain injury or any other illness or injury. I feel that anyone who wants to learn self-healing support skills will benefit. People come with many conditions. We work to a simple format. We do five activities.

 

We do a minute of anapana meditation, then we do another. We do maybe seven-to-ten minutes of meditation over the course of the hour. I lead everyone in simple qigong exercises that can be done sitting in a chair. We each share something positive from the week — something that has helped us to understand something, or helped us to let go of something, or something that was just a simple pleasure. I lead a three-to-five-minute guided imagery meditation which I usually make up each time. Then we close holding hands in the circle. We hold until it feels right to let go. We often hold each other in the circle for a while.

 

Many wonderful people came to these circles. One young woman was paraplegic. She lived autonomously. She took public transportation to come to the meetings. She wore a button that read, “Piss on Pity.” 

 

Another young woman had ALS. Her father brought her. She could not move anything except her head. She typed messages with her chin. I once asked her if she was okay with our doing the qigong movement. She typed out that she was okay with it. Then she typed out — “I am doing it with you…”

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